Ick

Having some problems with the prednisone taper maybe. I dropped down to 15mg yesterday and have had a headache and been nauseated and fatigued all day. .. oh and cranky. Hope I feel better tomorrow. :(

Home Sweet Home

Well I finally moved back home today. We had been talking about moving me home really soon because my mom's back is better and my health has been really good. We had planned on getting the house cleaned up a bit first (Ross living like a bacholor had left in an unfit state for my standards). However, my mom started getting a cold so I thought it was prudent to get out of her house immediately. I spent all day packing up and driving home. I am exhausted, but thrilled to be back in my own house. It is going to take me while to get unpacked, and cleaned and organized, but at least I'm own my way to living my own life again.

My visit on Monday with Dr. Awadh went really well. He said that he thinks he will take me off of the Cytoxan next month (and probably switch me to Metholtrexate). My labs all look really good. There is no sign of inflammation despite the fact that I am now down to 17.5mg of Prednisone. I still have a runny nose and some congestion, but he said that he thinks the systemic Wegener's is under control.

I am now going to go lay my head down in my own sweet bed on my own sweet pillow (at least until Amelia wakes up and needs a bottle) and drift into blissful sleep. :)

Bad Week

My mom's back went out while we were in Boston. The doctor told her that she has degenerative disk disease and some arthritis. Unfortunately, she is almost bedridden and is on Vicodin and Valium to help with the pain. I am having a terrible time taking care of her and the house and her business and Amelia too. Tomorrow I am taking her to a spinal pain clinic. I hope they can help. Ross is terrified that I am going to wear myself out and get really sick. Frankly, I am too. I am so freaking tired.

Everything is so complicated. I am not supposed to be in crowds or around sick people
so when I take my mom to the doctor, I have to bring Amelia and sit in the car while she goes in. I drove around for 2 hours on Thursday waiting for her.

I am also losing some hair. It isn't noticeable on my head, but when I shower quite a bit is falling out. Ugh.

And Ross sold his share in his company on Friday and thought he was going to get a contracting position right away, but the new company didn't have an answer for him. I hope he hears something soon.

I am just so sick of our lives being so chaotic.

Boston

Our trip to Boston went well. Amelia was quite good in the car. She really only cried when she needed fed or changed and once I figured out how to feed her a bottle while she was in the car seat, we made much better time.

It was great to see Ross' parents. His dad was just able to start eating again. He even had a hamburger while we were there. Ironically, I was feeling pretty nauseous and couldn't get my hamburger down.

We were really excited that we got to visit the ocean with Amelia. She squealed (we don't quite think it was in delight) when Ross dipped her feet into it.