Irony

Of course, I woke up with a headache on Saturday. I know it was because I bragged about not having had one in so long... or maybe it was because I was up till 2am the night before. I didn't even have a good reason for being up so late. Ross had to do work so he was using the laptop while I watched the Tivo and I didn't really want to go to bed alone. At least it wasn't too bad of a headache. 1000mg of Tylenol and a cup of caffeinated tea seemed to do the trick. Luckily Ross was able to deal with Amelia for an hour or so while I pulled myself together. Otherwise I doubt I would have ever gotten functional.

One of the hardest things about having a baby is that you can't take a break. You don't get a sick day and ironically, I am sick all the time. It doesn't matter how much your feet hurt from arthritis or if you are vomiting or have diarrhea or something else God awful, the baby still needs fed (and changed and burped and entertained and and and and and...) I don't remember anyone talking about that before we had Amelia. Maybe for other parents it isn't quite as big of a problem because they are only sick a few times a year and not constantly.

Oh, and I'm starting up my methotrexate again tonight.

Bad Week

My mom's back went out while we were in Boston. The doctor told her that she has degenerative disk disease and some arthritis. Unfortunately, she is almost bedridden and is on Vicodin and Valium to help with the pain. I am having a terrible time taking care of her and the house and her business and Amelia too. Tomorrow I am taking her to a spinal pain clinic. I hope they can help. Ross is terrified that I am going to wear myself out and get really sick. Frankly, I am too. I am so freaking tired.

Everything is so complicated. I am not supposed to be in crowds or around sick people
so when I take my mom to the doctor, I have to bring Amelia and sit in the car while she goes in. I drove around for 2 hours on Thursday waiting for her.

I am also losing some hair. It isn't noticeable on my head, but when I shower quite a bit is falling out. Ugh.

And Ross sold his share in his company on Friday and thought he was going to get a contracting position right away, but the new company didn't have an answer for him. I hope he hears something soon.

I am just so sick of our lives being so chaotic.

Out and About

My mom and I went out to lunch today and then I spent a gift card I had gotten when Amelia was born for The Children's Place. I got 5 long sleeved onsies for her and a jacket to take to Boston. I figure it's going to be colder and I didn't think her summer dresses were going to cut it. We had a great day.

Ross had to work late tonight so I took Amelia over to my dad and Linda by myself tonight. I wanted to get over there and have them see her before we went to Boston so it wouldn't be a month between visits. They are over-the-moon about her. My dad was really proud because he was able to put her to sleep when Linda couldn't.

My dad also said he thought my moon face was looking thinner. I am down to 25mg of Prednisone a day, so that might be true. I hope so, but I think I look pretty fat. Ross calls me 'Prednazilla'. I am worried that about what his family in Boston will think, but being fat is better than being dead. :) I am happy that I haven't been suffering any ill effects from the Prednisone taper yet. People on my WG Yahoo board generally seemed to do well tapering until they got to about 5mg though.

Oh, and I'm doing really well with my nail biting. I painted them last night and they almost look normal again. I think they next time I paint them they will actually be looking good. :)

Out and About

Today I drove myself to my labs while my mom babysat Amelia. It was sort of nice to be out alone for once. I have constantly had someone with me since Amelia was born.

It was also the first time I had worn my contacts in a long time. Boy was everything a lot clearer! I like them way better to drive in, but probably won't wear them most days because I want to be able to nap in the afternoon without taking them out.

My sinuses were pretty stuffy again today. At least the Sinus Rinse helps for several hours at a time. I can't believe I didn't know about it when I was pregnant. I was so congested. I really think my ob should have recommended it instead of just saline spray.

Ross is having a pretty hard time. His dad is back in the hospital because he hasn't been able to eat anything. Before my WG diagnosis, we had planned on going up to Boston at the end of August... I guess that less than 2 weeks away now so it doesn't look like we will make it. We were going to take a train, but I don't think public transit is a good idea while I'm on Cytoxan. Maybe we'll go up for Thanksgiving. I am worried about Ed and think we need to make a trip soon though.